WE'RE HOME!
That's right, Ashley
came home from the hospital yesterday! As we left the hospital, the
man at the front desk asked me for the last name of the patient. I said,
"O'Rear". He responded, "Oh, Ashley. Our phone calls
will be cut in half now that she is leaving!" The lady at the admitting
desk commented, "She has been a popular little girl while she was
here!" One man who has been working at the hospital for about four
years said that he has never seen a patient who has received as many
phone calls, visitors, and gifts as Ashley! Below is a series of photographs
showing a "panaromic" view of Ashley's hospital room, with
many of the cards, stuffed animals, balloons, and other gifts that Ashley
received during her hospital stay. (You can click on any picture to
see it enlarged.)
I mention all that simply
to say that the love and support that everyone has shown to Ashley and
to our family has been truly overwhelming! We have received over 400
e-mails, and my current "Ashley Update" e-mail list contains
218 e-mail addresses, and is growing every day! What a blessing from
God to have so many people shower us with love, and to have literally
thousands of people all over the world praying for our little girl!
We are being reminded constantly what a special little girl Ashley is,
and what a blessing God has entrusted to us in the form of our children.
WONDERFUL HOMECOMING
We stopped at Catfish
King on the way home from the hospital to get Ashley some shrimp (her
fifth shrimp dinner in the last week, I believe!), and then came to
the house. When we got home, there was a banner taped to the sidewalk
that said, "Welcome Home, Ashley". There was a balloon bouquet
on the porch from some of our friends in Corpus Christi, Texas, and
a planter full of beautiful flowers on the porch as well, from some
friends here in Waxahachie. Ashley and Justin's beds had new "Looney
Tunes" sheets and bedspreads on them, a gift from some of the ladies
in the church here. After we got in the house and got settled, Ashley
had several visitors.
This morning, a dozen
yellow roses arrived from the owners of a local florist shop (they are
friends and we go to church with them). A balloon bouquet also arrived,
attached to a cute teddy bear. That was sent from some missionaries
in Russia. Several people have stopped by today to see how Ashley is
doing, and the gift stack has grown even more!
NOT WORTHY
All throughout this ordeal,
as people have showered us with love and support, I have stopped and
thought several times to myself, "My goodness, we don't deserve
all this!" And we don't! But that has served as a poignant reminder
to me that Christianity is not about getting what we deserve ... it
is all about getting so much better than we can ever hope to deserve.
I have been reminded of the wonder of God's grace and mercy. "Praise
God from whom all blessings flow!"
ALL THE COMFORTS OF HOME
It was wonderful to sleep
in our own bed last night, and to have our whole family back together
again! Ashley slept with Susan and me, and Justin slept on his new Looney
Tunes bedsheets! We had a wonderfully peaceful night's rest.
THE LONG JOURNEY BEGINS
On Tuesday of next week,
April 1, we will travel to St. Paul hospital in Dallas for the doctors
to perform a "radiation simulation" on Ashley. They will mark
Ashley's head and spine at the spots where the radiation will need to
be aimed, and get everything ready for her first treatment.
Then on Thursday, two
days later, we will go to Children's Medical Center for Ashley to receive
her first dose of chemotherapy (Drug 1, see below), followed
by her first radiation treatment at St. Paul. For six weeks, we will
travel to Dallas each day, Monday through Friday, for Ashley's radiation
treatments. On one day during each of those six weeks, she will also
receive Drug 1 of her chemotherapy.
THE JOURNEY CONTINUES
After the six weeks of
radiation and chemo, we will get a one-month break before resuming treatment.
Then we will begin a series of eight 6-week cycles.
- Week 1: Chemotherapy
(Drugs 2 & 3) for five days on an outpatient basis.
- Week 2: Bloodwork through
our local physician to monitor blood counts (no treatment).
- Week 3: Bloodwork through
our local physician to monitor blood counts (no treatment).
- Week 4: In the hospital
for 5 days for chemotherapy (Drugs 4 & 1).
- Week 5: Bloodwork through
local physician, and chemotherapy (Drug 1).
- Week 6: Bloodwork through
local physician, and chemotherapy (Drug 1).
This six-week cycle will
be repeated a total of eight times, so we are looking at a 48-week regimen
of chemotherapy after the radiation has been completed.
THE DRUGS
- Drug 1 is Vincristine,
"a plant alkaloid which interferes with cell division."
The most common side effects of this drug are constipation, stomach
cramps, and hair loss.
- Drug 2 is Etoposide,
or VP-16, "a natural product; a semi-synthetic podophyllotoxin,
which damages cell protein and stops cell division." The most
common side effects of this drug are low blood counts with increased
risk of infection, and nausea and vomiting.
- Drug 3 is Cyclophosphamide,
an "alkylating agent which interferes with cell division (stop
or slow down cell growth). It attacks cells in a tumor whether the
cells are resting or dividing." The most common side effects
of this drug are low blood counts with increased risk of infection,
nausea and vomiting, loss of appetite, hair loss, blood in urine,
and taste distortions.
- Drug 4 is Cisplatin,
an "alkylating agent which interferes with cell division (stop
or slow down cell growth). It attacks cells in a tumor whether the
cells are resting or dividing." This is the drug which requires
hospitalization so that the patient can be monitored closely. The
most common side effects of this drug are low blood count with increased
risk of infection, severe nausea and vomiting, and loss of appetite.
COUNTER-ATTACK
In order to counter the
increased risk of infection which is a common side effect of several
of these medications, Ashley will be taking the antibiotic Bactrim.
This drug can also cause nausea and vomiting, along with skin rash and
itching.
In order to reduce the
risk of blood in the urine while being treated with Cyclophosphamide,
Ashley will be taking a drug called Mesna.
APPREHENSION AND OPTIMISM
At this point we are
apprehensive about the whole year-long process. However, we understand
that it is in Ashley's best interest. The doctors seem very optimistic
about the hopes of a total cure for Ashley's cancer. We hold an even
stronger optimism, because we are trusting is something much more powerful
than mere drugs. We are trusting in the healing power of Jehovah Almighty.
He is in total control, and we trust Him to do what is best for Ashley.
THANK YOU
Thanks again to all of
you who have been so supportive. Your encouragement has helped us tremendously.
I will continue to update this journal as long as there seems to be
a need. May the God of all grace and mercy continue to grant you peace.
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